Organizations You Should Know
If you are just learning about DS, you know there is a wealth of information available to you. We at KGF have compiled this list to help you get started on your JOURNEY OF HOPE.
The Global Down Syndrome Foundation
www.globaldownsyndrome.org
LuMind IDSC Foundation
www.lumindidsc.org
National Down Syndrome Congress (NDSC)
www.ndsccenter.org
National Down Syndrome Society (NDSS)
www.ndss.org
The Down Syndrome Educational Trust
www.downsed.org
National Association for Down Syndrome (NADS)
www.nads.org
Local to the Portland, Oregon Area
Down Syndrome Network Oregon (DSNO)
www.dsno.org
Northwest Down Syndrome Association (NWDSA)
www.nwdsa.org
Karen Gaffney In Action
The following links will help you learn more about the work that Karen does to help people see that Down syndrome is a LIFE WORTH LIVING, and more importantly, a LIFE WORTH SAVING!
Crossing Tahoe, A Swimmer’s Dream
Karen Gaffney swims the width of Lake Tahoe.
Imagine the Possibilities
Karen Gaffney, the first person with Down syndrome to swim a relay across the English Channel.
OneLife LA – January 2019
OneLife LA is a large rally for life held every year in Los Angeles. The theme for the year that Karen was their Keynote Presenter was “Made for Greater”
https://www.facebook.com/1lifela/videos/1011650262316390/
Address to the UN on World Down Syndrome Day – March 21, 2019
http://webtv.un.org/meetings-events/other-meetingsevents/watch/social-protections-for-women-girls-and-all-those-with-down-syndrome-csw63-side-event/6016647314001
The University of Portland granted Karen an Honorary Doctorate degree for the work she does as an advocate for people with intellectual disabilities.
https://www.youtube.com/watch?v=VHhWdp2qskc
Karen presented at TEDx Portland, one of the top 5 venues in the world for TEDx Talks. She is helping audiences all over the world see Down syndrome in a whole new light.
https://www.youtube.com/watch?v=HwxjoBQdn0s
Karen traveled to London and teamed up with award winning actress and comedy writer Sally Phillips to raise funds for Kisharon, a phenomenal organization that offers education, opportunity and support to children and with complex and profound learning disabilities. Individuals supported by Kisharon are taught the skills they need to live independently within the community and to lead fulfilling lives. What can be better than that!
https://www.youtube.com/watch?v=loit9OwXBQw
Karen Gaffney, Defying Gravity!
http://www.angelusnews.com/articles/making-waves-karen-gaffney-is-a-champion-for-those-with-
down-syndrome
Marc Thiessen, an award winning columnist for the Washington Post heard Karen’s messages, and it prompted him to write this article.
https://apnews.com/article/57c73090f6ff4b87bdf7844e9f4751f3